As the world came together to observe World Autism Day on April 2, the Shiranee Joseph de Saram Foundation (SJDSF) reaffirms its commitment to advocating for the rights of those with Autism and to promoting communities where neurodiverse people can thrive.
Autism is mainly characterised by unique social interactions, non-standard ways of learning, keen interests in specific subjects, preference for routines, challenges in typical communications and particular ways of processing sensory information. Unfortunately, autism remains widely misunderstood, often leading to stigma and social exclusion resulting in isolation of both individuals and whole families. The foundation, named in honour of Sri Lanka’s pioneering Speech Therapist Shiranee Joseph de Saram, is dedicated to raising awareness, providing resources, and empowering people with autism and their families to reach their fullest potential.
Shiranee’s daughter and a Neuroscientist, Praveena Joseph de Saram, who now leads SJDSF, said, “Autism is a lifelong condition that is caused by genetic variations, either spontaneous or inherited. Nearly 1,000 different genes may be associated with Autism. A recent study of 150,000 people conducted by Mt. Sinai Hospital in New York confirmed that 70 genes are very strongly associated with autism and more than 250 have strong links to the underlying neurodevelopmental differences.”
“There is no cure, which means the needs of the entire lifespan must be considered and awareness built into the training of medical professionals, educators, employers and even first responders and the justice system,” she said.
The foundation acts with the belief that those with autism deserve to live with dignity and acceptance and in their potential to make myriad meaningful contributions to society. Through its ongoing efforts, the foundation works tirelessly to foster a society where neurodiversity is not just acknowledged but celebrated.
Key areas of focus
Supported employment program: The foundation’s flagship initiative aims to empower neurodiverse people through structured employment opportunities that incorporate capacity building of inclusive minded employers and ongoing training and support to foster meaningful long-term employment, promoting economic independence and social inclusion.
Thrive sheltered workshop: This dedicated workshop provides a supportive environment where neurodiverse persons can learn practical skills, build confidence and a sense of community.
Increasing public understanding: Through impactful campaigns, educational materials, and community outreach, the foundation challenges misconceptions about autism.
Supporting families and persons: Families of those affected by autism often face challenges in accessing resources and support. The foundation is committed to empowering caregivers, educators, and community members with accurate information and practical strategies to help neurodiverse people reach their full potential for independence and employability. They also have a variety of programs to support the wellbeing of parents and siblings.
Consultant Speech Therapist Nayanalie Dassanayake, who leads the design and implementation of programs at SJDSF, said, “We believe that everyone deserves to live with dignity and acceptance and that people with Autism have a right to the opportunities neurotypical people have. Our work is driven by an unwavering commitment to break the stigma surrounding autism and create a more inclusive society where no one is left behind.”
